Us myelopathers live in a higgeldy piggeldy world. Nothing is straight forward, nothing is set in stone when it comes to our condition. It’s eight years ago this month that I had my first operation. When I think of the physical and mental battle I’ve had since then it’s amazing I’m still here never mind have written a book. I don’t say this lightly; my battle with myelopathy has been as exhausting mentally as it has physically. I can’t tell you how often I’ve been on the edge of madness. Connecting with others sufferers through http://www.myelopathy.org/support.html has helped me understand my condition as well as supported my mental health. Any long term illness with chronic pain can lead to depression, acting out of character, gambling, drinking, debt – blogging is a way of letting off steam whilst connecting with the myelopathy community.
My husband and children have been total rocks. They understand the condition well because they live it with me. They’ve seen me on my hands and knees trying to get from the sofa to the kitchen to put the kettle on because I want to do it for myself. They’ve seen me bent over double, breathing like I’m in labour because the pain is so acute it takes my breath away. I’ve spent the last seven years stumbling, swaying, knocking into, tripping over, falling onto a world that seems to be erratically spinning around me.
I’ve always been a glass half full person. When I couldn’t work, walk, sleep I wrote. I poured all my pain, frustration and despair into blogging and writing Young Adult romantic thrillers.
Two weeks ago I self published Random Attachment. For me this is a huge thing. A massive achievement. Also it’s my ray of hope. I won’t bore you with what I’ve lost, with what my condition has stripped me of because I don’t feel sorry for myself. But writing has enabled me to reinvent myself, to be Gertrude T Kitty, author. It’s taken the spotlight off my condition and has given me back some self esteem.
I don’t imagine my book will make multi million sales or I’ll have royalties into the thousands but whatever I have once Amazon take their cut I hope will support my writing and help YMCA West London, Centrepoint and http://www.myelopathy.org/ Up to now I have written for myself, now I am writing for others. I’ve worked this last fortnight on Twittering, Facebooking, vlogging, anything to get my book promoted. My husband has been photocopying and cutting up little adverts for Random Attachment. I’ve been very unwell and immobile during this time so have only left the house once but I did put it up in a newsagent and coffee shop in Pinner. I am up and feeling well today so have my photocopies and pins in my bag ready to pin it up whereever I legally can. I’m asking you, if you could print out the advert and pin it up on a board where you work, or where your children have clubs.
My lovely bookclubbers have bought my book. Thank you for supporting me. I’m dreading feedback because I know how high our expectations are when we critique some of the greats in literature…remember I’m a minnow.
So here I am before Christmas, with a book that is all the more precious to me because my daughters were so instrumental in supporting me during writing and getting it out there.
Yesterday I filmed my first vlog about my book. It took me five attempts because I was so waffly and repeatedly said ‘you know’, ‘so’, ‘erm’. But here is the link to it and the link to my Young Adult (unsuitable for under 14’s) romantic, thriller. I would love if you’d follow me on Twitter @gertrudetkitty. If you buy my book that would be wonderful…if you read it that would be even better and your critique would be the icing on the cake…oh and sharing it. It’s a lot, I know, because it’s hitting your purses, wallets and your time. God I hope the book’s not terrible after all this.