Support

If you have cervical myelopathy, or think you have it, check this site out http://myelopathy.support/myelopathy.html   I’ve had csm for five years but only recently found this site.  I’ve been stumbling around (metaphorically and physically) trying to figure things out myself.  This site is brilliant, there’s definitions of terms, visual explanations, personal stories, medical breakthroughs and investigations.  So check it out because it’s helped me immesely.  I’m still a follower.  It’s also helpful for family and friends to visit the site too because myelopathy effects the whole family, my husband is now my full-time carer.  Like mental illness, myelopathy isn’t always physically obvious so those around you may not be sympathetic particularly if you are middleaged.  Myelopathy is a natural degenerative disease, not uncommon in senior citizens, where it’s progression is usually slow.  Health professionals are not always trained to care for younger sufferers.  Myelopathy is not a one size fits all disease.  It’s complicated.  Each person’s body is unique, how we sustained myelopathy will be different, the damage to our spines will differ, nerves damage from surgury won’t be the same.  I could go on because I’m a bit boring like that but you’ll get the picture from the website’s post.

Now back to a bit of what this site is about.  I love a disaster movie, particularly alligators, conger eels, sharks.  I saw and heard of something horrible yesterday.  It was the most cruellest, freakish thing to do, I nearly cried – shark finning.  My advice is never click on a related link.  It will suck your breath out of your body it’s that horrendous.

rag and bone man human  my song of the week.  Remember we are only human so don’t be too hard on yourself (unless you have done something really bad)